How Jonathan Van Ness Can Save Us All: The History of HIV Representation in Media

Van Ness might be the ideal icon to openly speak about the reality of living with HIV/AIDS in 2019.

Our beloved Gay Jesus, Jonathan Van Ness, may actually save lives in coming years.

No, perhaps not directly, but as a darling of Netflix's Emmy-nominated Queer Eye, Van Ness has a platform to represent the LGBTQ+ community and be the voice of social change that's heard with a simple streaming subscription; and in a candid interview with The New York Times, Van Ness recently shared that he's living with HIV. Ahead of the release of his memoir, Over the Top: A Raw Journey to Self-Love, the non-binary TV personality shared his story of testing positive at 25 after fainting one day at work. "When Queer Eye came out, it was really difficult because I was like, 'Do I want to talk about my status?'" he said. "And then I was like, 'The Trump administration has done everything they can do to have the stigmatization of the L.G.B.T. community thrive around me'…I do feel the need to talk about this." Now 32, he's opening up about being an addict and a survivor of sexual abuse long before he became Queer Eye's "effervescent, gregarious majestic center-part-blow-dry cotton-candy figure-skating queen," in his own words.

Van Ness might be the ideal icon to openly speak about the reality of living with HIV/AIDS in 2019. He's called the success of Queer Eye "the honor of a lifetime," and he's become a public face for non-binary members of the LGBTQ+ community (along with singer Sam Smith and actors like Asia Kate Dillon and Nico Tortorella).

But while queer representation in TV and film is still hardly substantial, when it comes to HIV status, media representation is about more than just fairness and accuracy. When the HIV/AIDS epidemic disrupted the public's sense of safety in the 1980s, deep misunderstandings and fear of the unknown fostered intense stigma against HIV-positive individuals. In the decades since, studies and public polling have shown that increased media representation of HIV/AIDS directly correlates with reduced social stigma. About six in ten Americans get their HIV/AIDS information from the media, whether that's watching Tales of the City's HIV-positive Michael Tolliver deepen his relationship with his HIV-negative boyfriend or watching Van Ness crown each of his clients "queen." Van Ness joins a small cohort of celebrities who are open about their HIV-positive status. Former Wales rugby player Gareth Thomas also recently confirmed he was living with HIV. Soon after, UK's leading HIV and sexual health charity shared that they'd seen a "sharp increase in the number of people accessing information about HIV from our website and THT Direct telephone service," as well as orders for their HIV self-test kits.

Today, about half of all Americans (52%) are not familiar with the term "undetectable," and 8% say they've heard the term but are unaware of what it means. Simply, HIV-positive individuals treated with antiretroviral therapy (ART) can have viral loads so low that they're not detected by standard lab tests. Hence, in a treated individual, the virus cannot replicate in the body and the individual cannot pass on the virus to another person: "Undetectable equals untransmittable." People can reach this stage of the disease within six months of beginning treatment—and continue to live full, uninterrupted lives. Additionally, polls assessing public awareness of new HIV prevention strategies, like pre-exposure prophylaxis (PrEP), find that less than half (42%) of the public is aware of the daily pill or the fact that individuals who are at a high risk of contracting HIV can reduce their risk by as much as 99% (as long as they take it consistently).

"I've had nightmares every night for the past three months because I'm scared to be this vulnerable with people," Van Ness told The New York Times. His fears went beyond his career as a TV personality; there's still rampant misunderstandings about who becomes infected with HIV which date back to panicked media coverage in the 1980s. In 1985, American movie icon Rock Hudson was the first well-known celebrity to die of AIDS-related complications; rock icon Freddie Mercury confirmed his HIV-positive status the day before his death from the disease in 1991; and fear continued to dominate America. Infected patients were treated as pariahs as paranoia and fear about the virus pervaded society. "Nurses wouldn't tend to their bedside; they wouldn't deliver them food," says Joanne Simons, CEO of Casey House, an HIV/AIDs speciality hospital in Toronto. "They were obviously really concerned about contracting HIV themselves and [there was] really a lack of understanding that it couldn't be transmitted through touch."

But celebrity outreach and increased media representation soon began shifting attitudes. In 1991, when Princess Diana visited patients at Casey House, front-page photographs showed her shaking hands with patients and kissing them on the cheeks, inspiring more compassion for infected individuals and, perhaps more importantly, dispelling common myths about the disease that caused stigma to fester. Similarly, in 1991 Magic Johnson announced his retirement from basketball due to his positive HIV diagnosis; and in the '90s Pedro Zamora became one of the first openly gay men in popular TV, appearing on MTV's The Real World: San Francisco to educate viewers about living with HIV before passing away from AIDS-related complications shortly afterwards. Pop culture slowly began to represent the human side of the disease in films Iike Philadelphia (1993) and And the Band Played On (1993). On ER (1997) Jeanie Boulder was the first TV character to contract HIV (she received treatment and went on to thrive throughout the series, becoming a counselor for youth with HIV).

Princess Diana at HIV hospital Princess Diana at Toronto's Casey HouseTorontoism

In fact, a Gallup poll conducted in 1997 found: "The public is somewhat less critical of those who get AIDS than it was a decade ago, but 31% of Americans still believe that AIDS is a punishment for a decline in moral standards (compared with 43% who felt that way ten years ago), and 40% say that the victims of AIDS are themselves to blame for getting the disease (compared with 51% who felt that way in 1987)."

HIV-positive characters have been slowly working their way into TV shows, from the aughts' Queer as Folk to the more recent Tales of the City, Pose, How to Get Away With Murder, Looking, and even Sesame Street. Characters grapple with their new diagnosis, process the loss of friends, navigate serodiscordent relationships (one between an HIV-positive and negative individual), and generally get on with their lives without HIV defining their characters. Thanks to increased visibility and public health awareness, recent polls find that most Americans of all racial and ethnic backgrounds are "comfortable working with (79%), having a close friendship with (77%), and sharing a living space with (62%) someone who is living with HIV. This is true across racial and ethnic lines."

But none of that is to say there's enough media representation or understanding in society; that's partly what was giving Jonathan Van Ness nightmares in the weeks before sharing his HIV status. With a large majority of Americans (80%) identifying HIV as a "serious national issue," and with 46% reporting to personally know someone for whom it is a "serious concern," living with HIV is not a marginalized experience. To date, about 1.1 million people in the U.S. are HIV-positive (with an estimated 1 in 7 unaware of their infection). While we reject stigmas that attach moral judgments to HIV status, it's often underestimated how infection rates affect all sexual orientations, ethnicities, and socioeconomic statuses. For instance, most newly infected individuals are between the ages of 25-34, and gay and bisexual men only account for an estimated 66% of annual HIV diagnoses through sexual contact, leaving heterosexuals to account for 24%. The numbers, though, reveal more nuance and social disparity when evaluated for rates of infection in underserved communities and for people of color.

Damian (Daniel Franzese) in "Mean Girls"

In 2019, there's no reason for media's scant representation of mixed HIV status relationships or accurate depictions of living with HIV—other than stigma, which lingers as the backfire of ignorance. Interestingly, in 2017 The Elizabeth Taylor AIDs Foundation (ETAF) noticed a particular absence of HIV-positive characters in American TV. ETAF Ambassador and actor Daniel Franzese (Looking, Mean Girls) and ETAF Managing Director Joel Goldman held a roundtable discussion with actors and network show creators from HBO and NBC to discuss "how the current lack of HIV representation is related to the climbing infection rates today." The roundtable concluded, "The lack of HIV stories may have a correlation with the rise in infection rates and the fact that people are either choosing not to or don't know how to be treated once they're diagnosed." Franzese (who has credited his Mean Girls role as the lead character's gay best friend for helping hm to come out as gay) says that the LGBTQ+ community has "moved on to adoption and marriage equality and trans acceptance, but it seems that HIV has taken a backseat to those other movements and they are all important, but I feel like we need as a community to bring that issue back to the forefront."

He added that pop culture icons—exactly the likes of Jonathan Van Ness—are key to spreading education and prevention to fans of all ages and backgrounds. "Let's see Beyonce take a PrEP pill with a glass of lemonade," he said.

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Did James Charles Come Out on Top of the Tati Westbrook Saga?

After James Charles, Tati Westbrook, and Jeffree Star presented their sides of the story, each called to lay the drama to rest. Now, fans are beginning to question who won the war — and if the cease-fire will last.

Over the weekend, James Charles, Tati Westbrook, and Jeffree Star decided to put their gummy vitamin-catalyzed feud to bed after weeks of explosive drama, serious allegations, and potential cancellations.

The news came after Charles, the most recent victim of cancel culture, released his response to Tati's since deleted "Bye Sister" video and presented his side of the story in a receipt-heavy 41-minute video on Saturday. In it, Charles responds to each aspect of the scandal––from the initial weekend at Coachella that started it all, to the allegations of sexual misconduct––and shares a comprehensive slew of text receipts to disprove the misinformation that's been spread about him. Before concluding his thoughts, Charles gets emotional as he discusses the impact of the widespread hate had on his mental health. "The last few weeks of my life have been the most painful time I've ever had to deal with. My head and brain, for a hot minute, went to a place so dark that I didn't think that I was gonna come back from." A more in-depth breakdown of that video can be found over at Buzzfeed.

After Westbrook's initial video, many angry fans gleefully watched Charles' subscriber count fall from 16 to 13.4 million, as hers soared from 6 to 10 million. Now that the controversy is coming to a close, Charles appears to be back in the beauty community's good graces and regaining followers as quickly as Tati loses them. Tati then uploaded another video, entitled "Why I Did It," where she calls for the hate and abusive memes on both sides to stop. However, after seeing James Charles' response, Tati tweeted that she would be going on a digital break, and said she was disappointed to see Charles' video "littered with so many lies & half truths."

In the same response video, Charles went on to show some "brutal" and "vicious" texts received from fellow beauty guru Jeffree Star, who publicly called Charles a "danger to society" in the height of the scandal. Following the video, Star warned his followers not to believe Charles and threatened to put out a video of his own exposing the lies.

"Everyone keeps asking me for my RECEIPTS," the 32-year-old beauty guru wrote in a now-deleted tweet posted on May 18. "I have so much to say and some really sad, disgusting things to show you guys. James Charles tried to mass manipulate you all today. When I show you the proof and WHY I tweeted that tweet about him, you will all finally understand."

However, Jeffree Star apparently opted to take the high road and, instead of furthering the drama, he apologized for his actions and inflammatory texts sent to James and his tweet towards Ian, James' younger brother. Jeffree claimed that there were people telling him things behind the scenes that led him to call Charles a predator who should be locked up in jail, among other things.

In the shortest of all the videos that came out from those embroiled in the drama, Jeffree's boiled down to this sentiment: "I inserted myself into something publicly that I shouldn't have."

After Jeffree posted his video, Tati posted an apology note accompanied by a broken heart emoji. "Although I do not regret raising my concerns, I completely regret the way I went about saying them," she adds. "Even in this moment, I still have so many things I'd like to clear up, however, the continued call for 'receipts' is nothing more than a call for the never-ending bloodshed."

Charles thanked the two for their sentiments, and decided to not speak on the matter any further but alluded to meeting up with them to discuss it all in the future. "Thank you @jeffreestar & @glamlifeguru for your sentiments. I am on board to move on, will not speak about this further, but do hope to speak in the future when we're all ready. This week was awful for all of us and I ask that the community focuses on positivity moving forward."

For now, it seems like the storm has finally calmed down. But if this week showed us anything, it's that Youtube is on track to become the most pervasive and influential force in pop culture. While once seen as a fringe form of entertainment, Youtube ought to be taken seriously as one of our generation's most consumed (and wide-reaching) forms of media. Because of the unprecedented magnitude of YouTube stars' influence, much of the drama surrounding the vloggers is unpredictable––making for good TV but seriously untameable drama. We don't yet have measures set in place for these situations, because we've never lived in a world where controversies unfold at hyperspeed, spread like wildfire through viral memes, and leave digital footprints to be shared and ridiculed.

The fact that these content creators have complete agency over their content, without being tempered by the opinion of a team, and can choose to film and upload any content to millions of people in a matter of minutes, is what makes YouTube so exciting — but also what makes it dangerous. While film and TV are also susceptible to controversy, it's usually subject to more rigorous restrictions and regulations and goes through a series of checks and balances before going public. This lack of overhead is what makes YouTube the perfect environment for scandals, where someone's career can be defamed and canceled in less than 24 hours. But this instability and unpredictability are also what makes it impossible to stop watching.

For now, James Charles (probably with the help of a stellar PR team) seems to be on track to redemption, Tati's brand is thriving and her following has grown, and Jeffree will likely recover from the hits he took while getting caught in the crossfire. At the end of the day, all three figures have invariably gained exposure that will, in the long run, contribute to their fame. In some sense, all of those involved appear to not only have salvaged their careers but boost them along the way.

The close of the beauty blogger fight that shook the world feels like a series finale, but perhaps it's just the end of Season 1.

Sara is a music and culture writer.